I Hate Dialysis Message Board

Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: draven on February 07, 2009, 03:08:21 AM

Title: Nerve Damage after transplant
Post by: draven on February 07, 2009, 03:08:21 AM
Hi guys

Since i have had the transplant i have noticed that below the cut (where they put the kidney in) my skin is very numb. and i cant feel a thing there.anybody have this, did it come right. its basically near the pelvic area.
Title: Re: Nerve Damage after transplant
Post by: Wenchie58 on February 07, 2009, 03:26:51 AM

Yep  I can totally relate.  I have had multiple surgeries and each one of the "sites" has areas of numbness...sometimes it passes with time, others stay numb.  I had a surgery in 1998 and there is still a 2 inch area that is completely numb.  From my transplant in October I have a spot....in the pelvic area about 4 inches square that is still numb.  Doesn't bother me at all.
Title: Re: Nerve Damage after transplant
Post by: monrein on February 07, 2009, 03:49:16 AM
I think it's fairly common Draven as it can take quite a while for the nerves to sort themselves out.  It does feel weird but it's better than pain.  I hope it's not interfering in any way besides feeling odd.
Title: Re: Nerve Damage after transplant
Post by: Sluff on February 07, 2009, 06:22:13 AM
I agree that it is somewhat normal and the feeling may or may not come back.
Title: Re: Nerve Damage after transplant
Post by: okarol on February 07, 2009, 08:16:23 AM

Hey draven, how are you doing otherwise? What have you been doing?
 :waving;
Title: Re: Nerve Damage after transplant
Post by: pelagia on February 07, 2009, 08:51:33 AM
I had a caesarean when I delivered my son almost 19 years ago and I still don't have the same level of sensation around that scar as I do in nearby areas.  I don't think it's anything to worry about.
Title: Re: Nerve Damage after transplant
Post by: kellyt on February 07, 2009, 10:05:34 AM
Same here, but it's not bothersome.  It's common (or at least that's what my doctor told me).

I hope you're doing good!
Title: Re: Nerve Damage after transplant
Post by: draven on February 07, 2009, 12:13:40 PM
thanks for the replies. i have a cut on my stomach from a operation years ago. the feeling is little less on the cut. but not too bad.
I'm sure the feeling will come back. the cut is still a little red there, so we will wait see.

otherwise my health is good. creatinine is coming down to 128. the lowest its been since i left the hospital.
i changed to prograf yesterday. and my feet have started feeling better.

tried to go for a walk on the beach on Thursday but the wind was blowing too much. will go again in the week.
my sister is doing well. and she is back at work.

i cant wait to work again. if i can find a job. :(

anybody out there change from cyclosporin to prograf? did it make things easier. are there less side effects?
Title: Re: Nerve Damage after transplant
Post by: pelagia on February 07, 2009, 01:06:36 PM
Draven, I think the drug of choice in the US these days is prograf rather than cyclosporine.  My husband also takes prednisone and cellcept.  Glad to hear that you are feeling better.
Title: Re: Nerve Damage after transplant
Post by: kellyt on February 07, 2009, 01:27:44 PM
I was started on the Prograf, CellCept and Prednisone the day before surgery.  I've never tried the Cyclosporine.  I've had no issues, really.  I started on 4/4, then went to 4/3 and am currently on 3/3.  I think my last Prograf level was either in the 8's or 9's.
Title: Re: Nerve Damage after transplant
Post by: okarol on February 07, 2009, 03:19:31 PM

Jenna is also on Prograf and CellCept, no prednisone. They check her immuno levels once a month.
Title: Re: Nerve Damage after transplant
Post by: kellyt on February 07, 2009, 07:18:11 PM
I'm slowly coming off the Prednisone, but not soon enough!  I'll be at 12.5 mg for one more week and then I'll finally hit 10 mg.  After that I think I taper down 1 mg/month.
Title: Re: Nerve Damage after transplant
Post by: Hilrose on February 08, 2009, 11:55:32 AM
After my transplant, I noticed nerve damage to the right side of my groin, the feeling has never come back and it also affected my sex life as I don't have an feeling on that side of my body (area).... Well what esle can I say..... Damn! :Kit n Stik;