I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: vandie on August 30, 2006, 08:31:46 AM

Title: Hey!!
Post by: vandie on August 30, 2006, 08:31:46 AM

Hi all,
I am 39 years old, diagnosed last year with CKD.  Not on dialysis yet. If I don't transplant soon, I will need to make a decision as to dialysis.  Kidney function is at 17%.  I have four donors who are willing to give me a bean, but my antibodies are too high.  I will reject any kidney. Have been doing an infusion process called IVIg to bring them down.  No luck with my donors as yet. 
 

Title: Re: Hey!!
Post by: SpeedFleX on August 30, 2006, 08:50:07 AM

Hey Vandie and Welcome,

Good Luck with your Anti Body's and a Donor Kidney

Title: Re: Hey!!
Post by: goofynina on August 30, 2006, 10:29:53 AM

Hey Vandie, Welcome.  Make sure you know all your options before you begin dialysis such as  CCPD and CAPD,  i was on hemo for 3 years and now i am doing CCPD and i find it to be alot better, diet and fluid are not AS restricted, but there still are limits ;)   Hope to hear from you again soon...

Title: Re: Hey!!
Post by: Sluff on August 30, 2006, 11:59:22 AM

Welcome Vandie.

Title: Re: Hey!!
Post by: Mom3 on August 30, 2006, 01:28:01 PM

Good luck and that is good advice about comparing and becoming knowledgeable about all your options! Hope you don't have to go on dialysis but the more someone knows the better. I am also pre-dialysis. I have PKD.

Mom 3 (Mother of PKD pt.)

Title: Re: Hey!!
Post by: Joe Paul on August 30, 2006, 01:37:37 PM

Welcome Vandie, hope it all works out for you. Good to have you aboard.

Title: Re: Hey!!
Post by: Sara on August 30, 2006, 06:36:09 PM

Welcome to the site, Vandie.  I hope you stay off dialysis for a long while.

Title: Re: Hey!!
Post by: MattyBoy100 on August 31, 2006, 03:30:55 AM

Hi Vandi,

Hope you get it all sorted out.  I wish I had four offers from people willing to be donors!!!

Title: Re: Hey!!
Post by: vandie on August 31, 2006, 07:31:29 AM

I am a very fortunate girl, I know that.  Thank you very much!!

Title: Re: Hey!!
Post by: Bajanne on August 31, 2006, 07:55:46 AM

Greetings, Vandie, and welcome to our community.  This is just the place for you.  Here you can see what others have gone through, and get answers to some of your questions.  I do wish that everything works out well for you and the transplant.   We have a great section here concerning transplants, so have a look.  Welcome again, and I look forward to hearing lots from you.

Title: Re: Hey!!
Post by: John S. on August 31, 2006, 09:58:51 PM

Hi vandie and welcome!!! One thing to remember: question, question, question everything they want to do to you!!! Stay informed and research alot.
john s. >:D

Title: Re: Hey!!
Post by: Rerun on September 02, 2006, 12:48:12 AM

Vandie, good luck with your IVIg treatments.  Welcome to our site.  There is a section on transplants.  Remember, a transplant is not a cure.  It is just another form of treatment for CKD.

Title: Re: Hey!!
Post by: tamara on September 02, 2006, 04:06:07 AM

Quote from: vandie on August 30, 2006, 08:31:46 AM

Hi all,
I am 39 years old, diagnosed last year with CKD. Not on dialysis yet. If I don't transplant soon, I will need to make a decision as to dialysis. Kidney function is at 17%. I have four donors who are willing to give me a bean, but my antibodies are too high. I will reject any kidney. Have been doing an infusion process called IVIg to bring them down. No luck with my donors as yet.
 

Question, what is IVIg ?

Title: Re: Hey!!
Post by: vandie on September 02, 2006, 08:14:21 AM

IVIg is Intra Venous Immune Globulin, it's a pooling of thousands of people's plasma.  It is cleaned and then then tranfused into me.  The end goal is to tame my immune system so that I can accept a donor kidney.  It seems to have worked.  I found out the other day that two of my donors are a match. ;D. 

Title: Re: Hey!!
Post by: Zach on September 02, 2006, 09:03:27 AM

Welcome!

Title: Re: Hey!!
Post by: BigSky on September 02, 2006, 06:36:52 PM

Welcome