I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: GuyIncognito on August 30, 2006, 07:45:09 AM
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Well tommorrow the 31st is the day I am supposed to find out if I am on the Transplant waiting list...Finally after 2 years of waiting.
Now I should give you a wee bit of a back story... 4 years ago I had a pre-emptive transplant from my mother which was lost to a baterial infection called Nocardia, this bacteria is so rare it was only the second reported case in the hospital and as a result I have been treated with caution and this I understand however I have been cleared by that hospital and listed but upon transferring out to Eastern Ontario I was made to do every test again as well as having to be cleared by infectious diseases once again - all good things I want to ensure that this transplant is going to last a long time... however for the past year I have been finished all the tests and cleared by all the doc's and still the coordinator comes up with mediocre excuses as to why I am not on the list.... Missing blood work, repeat tests and 3M (Meetings, Meetings, Meetings)
I am at my wits end with this lady as I can clearly see there are politics in play here, All I want is to be listed and I know very well it could be a long time before my transplant that is not the issue here, I need the positive forward motion that this represents as it would allow me to move past certain hang ups I have about the previous transplant as well as represent a new step in my life with our first baby due on the 12th on September and a wedding panned for October 2007 I need to have the piece of mind being on the list could give me... Maybe I'm crazy, Maybe I'm paranoid and maybe I read far too much into things?
I'll the result of my convo with the coordinator here tommorrow.
EDITED: Moved Topic to correct section - Goofynina/Moderator
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We'll all keep our fingers crossed with you! It sounds like everything is going to work out, be sure to let us know how it goes. Again, best of luck!
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Good luck Darlin and Gods Speed..Sassy
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I hope you can get this sorted. Is this co-ordinator the only one there as it sounds like she isn't helping much-can your neph help at all?
I understand the frustration of waiting to go on the list as have been through this recently too and finally after several years got there last week. I hope you will also be there tomorrow. :) Let us know how it goes.
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Good luck, Guy! Joe is waiting to be presented to the transplant list committee to see if he can be on the list, so I can empathize with you.
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Good luck, Guy, hope it goes well. Keep us posted.
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So frustrating!! Good luck.
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I've still got a few tests and alot more kilos to lose before i go on So good luck, hope all goes well.
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Don't you just hate the Bullshit they put you through just to get listed????
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Well today is the 3rd and as of yet no call from the coordinator... however after a long chat with Fayme and my parents we determined I need to stop stressing about this until the baby comes scheduled for the 12th of September as I wasn't sleeping and I had started to become paranoid as to why there would be such a delay.
I will let everyone know if I do get a call this week.
Thank you so much for your concern it truly warms my heart.
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Well today is the 3rd and as of yet no call from the coordinator... however after a long chat with Fayme and my parents we determined I need to stop stressing about this until the baby comes scheduled for the 12th of September as I wasn't sleeping and I had started to become paranoid as to why there would be such a delay.
I will let everyone know if I do get a call this week.
Thank you so much for your concern it truly warms my heart.
Good advice... don't stress! My transplant center takes forever to call people back unless they need blood work done! And yeay... for the baby! CONGRATS!
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I agree with MelissaJean, don't stress! It's too early for you to get stressed about the list, lots of times my doctor's don't call back for days after they say they will. The most important thing is to think about the baby. That's a big thing! Congratulations, let us know how that goes!
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Be sure and tell us when the baby comes!! We need good things to talk about too. (Did I say that?) :P