I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Vicky on January 20, 2009, 05:31:03 PM
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My husband, Dave, has been diagnosed with IgAN Stage IV and he's facing dialysis within the year. His GFR is 16.83 right now and his creatinine and BUN are steadily climbing. He's 54 years young, soon to be 55 and we're pretty much scared to death.
We do see the nephrologist on Monday to see what all he wants to do for now and find out when we need to prepare and what we need to do to prepare.
We live in the middle of no where Idaho, 3 hours from the nearest dialysis center, so it means we will be moving unless he can do peritoneal dialysis, which i'm doubting since he has type 2 diabetes and it's out of control. So we'll find out MOnday and go from there I guess.
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Welcome Vicky!
I can understand your hubby's fears. I had them too and have fallen greatfully into the arms of the members here at IHD. You will find answers, support, research information, love, hugs, room to scream and room to cry here. Welcome aboard!
Another Vicki
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Vicky where in Idaho. I use to live in Bonners Ferry. Just curious!
You may want to read the section here on NxStage. It is a little home dialysis unit.
http://ihatedialysis.com/forum/index.php?board=37.0
Spend some times on this site so you have lots of questions to your doctor.
:welcomesign;
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Hi.
Big decisions ahead for you. I'm kindof new to all of this myself. This is my 5th month on dialysis. Next week I will begin training for Home Dialysis. Any idea where you might move? Spokane? I live just south of Seattle. Most of my medical care is in Seattle but I dialyze in Puyallup (for another week anyway). If you decide to move out to the Seattle area, let me know!
Wendy
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Welcome Vicki! :welcomesign; I, too, have IgA Nephropathy. I was diagnosed in 1994 and was lucky enough to never be on dialysis and get a live donor 2 1/2 months ago on Nov 5th. I understand your husband's fears. Give him a big hug and ask him to join us whenever he wants! Knowledge is power and you will find a lot of "power" on this site. Read! Read! Read! :cuddle;
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G'day and :welcomesign;
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:welcomesign;
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:welcomesign;
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Welcome, Vicky. My friend has Type 1 diabetes and she did PD for several years prior to receiving a transplant. Ask your doctor about Extraneal as it doesn't contain dextrose. Best of luck to you, and keep us posted on what's going on with you and Dave!
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:welcomesign;
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Welcome Vicky, good to have you aboard.
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Welcome to our community, Vicky! Here you have a wonderful group of sharing caring (and daring, as Twirl says) individuals. We support each other all the way, with our cybershoulders to cry on, our cyberhugs, our caring thoughts and prayers when you are faced with further challenges. In fact, it is no hype when I say that this is more than a website; it is a family :grouphug; [I have tons of proof] This is a great place for information, but also a good place when you need to vent or rage or rant with people who totally UNDERSTAND. So keep reading and keep posting. Let us know how your husband is doing (and you too!)
Looking forward to hearing from you,
Bajanne, Moderator
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Welcome, Vicky! My husband also has IgA Nephropathy, and we also know what it's like to be young and facing dialysis. My husband started when he was 39 (he's 53 now). You may want to ask about home hemo since you live so far away from a clinic; that's the modality we use, and it's great for us. Best of luck to you both, and know that we're here if you need us.
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:welcomesign; Vicky. Another special caregiver that will find lots of information and support here. Hope you stick around and post often. Please keep us updated on how things are going. :cuddle;
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welcome to IHD Vicky, glad you found us. Sorry to here about your husband but know we are here to help. Please post any questions you might have in the appropriate forums and our members will respond with an answer for you. Again welcome
Boxman,Moderator
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:waving; Vicky
Nice to have you here.
Luckily you have a year or so to make some decisions for you and your husband.
It wont be easy but having that time frame will hopefully help you make the right choices to suit you both.
P&K
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:welcomesign;
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Hi :waving; I am sorry to hear about your husband. I am sure this site will provide a lot of support. Good luck
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no matter what, this is a good place to land. :welcomesign;
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:welcomesign;
Glad you found us.
Normie
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I'm not really sure where Bonners Ferry is I've heard of it tho. We're in a little town called Salmon, we're three hours from either Idaho Falls or Missoula, Montana so traveling for dialysis is not really an option.
I have a list of questions started and am keeping track of all his tests and visits and everything I can think of. I had to order a large BP cuff and I'm still waiting for that to come in so I can start keeping track of that too his BP is pretty high 140/90 last check. his A1C was almost 300 again he had it down to 80 once but it's gone back out of control again and they added Actos to the mix.
The only thing the neph has done so far is add a beta blocker, Toprol XL 50 mg qday.
I have to get a folder to hold his blood work and all tests and office visits. i hate reading them because they are never good but need to stay on top of things as much as I can since Dave is basically in denial about everything. He thinks he wil get a transplant and life will go back to normal and everything will be fine. Not even sure they will consider him as a candidate for a transplant. but we'll see.
Vicky where in Idaho. I use to live in Bonners Ferry. Just curious!
You may want to read the section here on NxStage. It is a little home dialysis unit.
http://ihatedialysis.com/forum/index.php?board=37.0
Spend some times on this site so you have lots of questions to your doctor.
:welcomesign;
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:welcomesign; This is a very hard time--there is so much to learn and absorb. Your husband is fortunate to have you taking care of things for him. Keep reading through the posts here. There is a lot of great information. And keep asking questions; members will be glad to help you. And ask lots of questions when you see the nephrologist. If you don't understand what he says, make sure he clairfies it for you. It can all be overwhelming. There are many caregivers here that will be more than happy to share their experiences. Keep us updated on your husband. Take care of yourself, too. :cuddle;
paris, Moderator