I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: openboat on January 16, 2009, 10:07:19 AM

Title: Hello
Post by: openboat on January 16, 2009, 10:07:19 AM: Hi! I've been lurking here for a while and finally decided to register and make it official. ;D

I've known I have PKD for about 12 years. I'm 40 now and am reaching the point (estimated GFR was 17 at my last labs) where something will have to be done before too long. I'd like to have a transplant before I have to go on dialysis, but I know I can't count on it. My one potential living donor had a negative crossmatch (yay!) and is proceeding with the rest of the tests.

I've been an avid whitewater kayaker and canoe camper for many years, hence the avatar and handle. :) In fact, I met my wife on the Ocoee river almost 14 years ago, hopefully a Tx will leave me with enough energy to get back on the rivers.
Title: Re: Hello
Post by: willieandwinnie on January 16, 2009, 10:11:21 AM: :welcomesign; openboat. Glad you came out of lurking. We are a wonderful group loaded with information and support no matter what relationship you have with ESRD. Please post often and good luck with your living donor. Again, welcome to the family. :cuddle;
Title: Re: Hello
Post by: paul.karen on January 16, 2009, 12:14:16 PM: :waving; Open

Glad you found us. Lurking here is very useful but it is much better and funner once you join in on the fun and discussions.
have you decided what kind of Dialysis you are going to go with?

P&K
Title: Re: Hello
Post by: openboat on January 16, 2009, 12:32:15 PM: My plan is to go with some flavor of HD, if I can't get the transplant first. I'd prefer to do HD at home, but I'll wait and see. My concern with PD is keeping the access clean since I still like to spend time of trails and rivers, and the Chattahoochee river here in Atlanta isn't exactly the cleanest water around.
Title: Re: Hello
Post by: thegrammalady on January 16, 2009, 12:37:40 PM: :welcomesign; glad to have you join us
Title: Re: Hello
Post by: MandaMe1986 on January 16, 2009, 12:39:33 PM: hi ;D
Title: Re: Hello
Post by: kidney4traci on January 16, 2009, 01:43:56 PM: Welcome! I too love boats, and chose home hemo because the lake water here is not really clean.... but still fun to ski!! Home hemo has alot of great benefits. I went with Nxstage. The links here have lots of info. BTW, I used to white water raft with my brother when we lived in California. We went down a class 4 by mistake. At least that's what he told me!!! Glad you joined, look forward to hearing your journey.
Title: Re: Hello
Post by: boxman55 on January 16, 2009, 02:11:48 PM: Welcome openboat, great that you joined up. We look forward to your posts and updates on your health. A few pics of your adventures would be cool too.

Boxman,Moderator
Title: Re: Hello
Post by: sewerrat4u on January 16, 2009, 02:58:06 PM: Yello there Boat! I'm a novice here too, but seem to enjoy all the positive feedback and interesting post's.
Title: Re: Hello
Post by: monrein on January 16, 2009, 03:52:19 PM: :welcomesign; and nice to meet another wilderness and white water enthusiast. I did 11 major canoe trips (usually just two of us and usually fly-ins), including one to the Arctic, after my first transplant. Never a problem and so much fun. All my trips have been in northern Canada and on many we saw no one else besides ourselves. We did 2-3 week trips with each trip getting longer and longer.
Sorry that you're dealing with CKD but this site is a great resource for both info and support.
Title: Re: Hello
Post by: Wenchie58 on January 16, 2009, 04:43:47 PM: Welcome to the group! Always share your adventures!
Title: Re: Hello
Post by: Bajanne on January 16, 2009, 06:17:27 PM: Welcome to our community! I love it when lurkers come out into the open. It means I don't have to try to convince you about this website. You already know all that we have to offer. So, it's just 'welcome to the family' :grouphug;
Looking forward to hearing from you :flower;

Bajanne, Moderator
Title: Re: Hello
Post by: G-Ma on January 16, 2009, 06:27:04 PM: :welcomesign;
Title: Re: Hello
Post by: Romona on January 16, 2009, 06:46:36 PM: :welcomesign;
Title: Re: Hello
Post by: pelagia on January 16, 2009, 07:13:17 PM: welcome! I love the photo and hope to hear more about your adventures. :welcomesign;
Title: Re: Hello
Post by: Zach on January 16, 2009, 07:41:02 PM: Welcome to the community!
:beer1;
Title: Re: Hello
Post by: jessup on January 16, 2009, 07:52:58 PM: G'day and :welcomesign;
Title: Re: Hello
Post by: Joe Paul on January 16, 2009, 10:24:55 PM: Welcome openboat, good to have you aboard.
Title: Re: Hello
Post by: Normie on January 18, 2009, 10:41:46 AM: Hi and :welcomesign;
This is a great place and lots of information.
Normie
Title: Re: Hello
Post by: Wattle on January 19, 2009, 02:23:02 AM: :waving; Hi and Welcome,

I too have PKD. It's great to be educated and make the decision on what dialysis YOU want to do. Knowledge is power.

I hope the transplant works out and dialysis can be avoided for the moment. Good Luck.
Title: Re: Hello
Post by: napala turki on January 21, 2009, 01:15:32 AM: Quote from: openboat on January 16, 2009, 12:32:15 PM
My plan is to go with some flavor of HD, if I can't get the transplant first. I'd prefer to do HD at home, but I'll wait and see. My concern with PD is keeping the access clean since I still like to spend time of trails and rivers, and the Chattahoochee river here in Atlanta isn't exactly the cleanest water around.

Good choice if you have a chance... enjoy your life while you can..... :clap;
Title: Re: Hello
Post by: paris on January 21, 2009, 07:27:34 PM: :welcomesign; Great intro! We are glad you aren't lurking anymore. It is more fun to play in person! We would love to see more pictures and hear more of your adventures. Post often and let us know how you are doing. Ask lots of questions. Someone will always have an answer. Glad you are with us :grouphug;

paris, Moderator
Title: Re: Hello
Post by: openboat on January 22, 2009, 01:48:58 PM: Thanks everyone for the warm welcome!