I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Tinah1968 on January 09, 2009, 05:35:21 AM
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I have Stage 5 kidney Disease and I am not ready to deal with the dialysis. I have been fighting this disease for about 8 years now and just now can actually say it our loud. I have been trying not to really talk about it thinking it would just go away. That never happened.
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:welcomesign; Tinah. Hope you find information and support you need here. We are a great group and will answer your questions and listen to your rants. Please post often. :cuddle;
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Welcome Tinah,
Unfortunately not talking about it does not help it go away, if it did we wouldn't be here. I understand your nervousness about dialysis but you have made the first step by facing it head on and talking about it. Please feel free to browse the contents of IHD and ask as many question as necessary to feed the wonder. Post often and you will enjoy being here and your Dr visits will be easier as you understand the process more through the knowledge you gain here. Good luck.
Sluff/Admin
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:welcomesign; Tinah Feel free to look around and get as much knowledge you can muster, if you ant find in in here just ask away. You will get your answer in a short time. Again :welcomesign;
EDITED: Fixed smiley error - Sluff/Admin
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Welcome to our community!
:beer1;
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:waving; Tinah
I also didnt want to deal with it. Until i found IHD. I have not started Dialysis yet but i have come to terms with it and realized there is much worse that could happen.
It is scary but being here at least for me has been a godsend. The people here are great and can walk you through what you can expect. And can give you REAL answers that a doctor may overlook or not even bring up to you in your discussions.
Please stick around. (no pun intended)
P&K
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I think your right you know last night I talked to a friend and I never really talk about this. But, When I finally told her what was happening in my life I felt relief like this was a new beginning and all I can do is quit worrying about what has happened and try to focus on what I can do. I may not get better but worrying about it may only make it worse. I do already have a fistula and have had it since October. So I am ready for it but just afraid.
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:welcomesign; Tinah. We can all understand your fears and your wishing it would all just go away. However, I firmly believe that the best way to deal with ESRD and it's complications is to pull our heads out of the sand and learn everything we can about the illness and the treatment so that we can maintain as much power and control as we can. Information is power and we each possess incredible strength when we use it. Joining this site is a great way to reclaim some control as together we know a lot about kidney disease and dialysis.
It's also a great place to complain and rant about the fact that we have to be bothered with it all in the first place. :cuddle;
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Thank you all and I am sure that in the days and weeks to come I will have lots of questions...
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G'day Tinah,
Welcome to IHD!
It is important to focus on how you will handle ESRD and dialysis when it comes along because unfortunately it's not something you can ignore and sadly it won't go away.
Just remember while it is difficult to contemplate it's NOT the end of the world and you need to be aware of that. Yes, changes are in store, but you can handle it just like many others have to.
You will do OK and hopefully we can help answer some of your questions and alay your fears so you can go into this next stage of life with a positive attitude so you can get on top of this so kidney failure won't control you.
:welcomesign;
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Welcome aboard. Is it Tinah or Tina? There is a ton of great information here. I hope we can all help you adjust to your new life. Please post often and let us know how you're doing.
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My name is TINA the H is for my last name. But Tina is fine.. I do have lots of Questions, About the foods I can eat, do you reaaly feel terrible after Dialysis like they say you do, I should know about some of this as my aunt died from Kidney failure about a week ago. the only reason I don't know is becasue she lived in anothe town about 4 hours from here and we did not see eachother often. Now I wish I would have asked questions instead of shutting it out. becasue it never went away.
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Hello, I just joined too. But can already tell you, you found the right place. :2thumbsup; Hope to see you around.
~Manda
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Welcome Tina, good to have you aboard.
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Welcome Tina!
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:welcomesign;
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Welcome Tina! You'll find lots of information here, but sometimes more important, you'll find hugs, laughs and many many informed ears to listen to you and understand what you're going through.
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G'day and :welcomesign;
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Hiya Tina!
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Hi Tina, Sorry it took so long to welcome you but :welcomesign; I am so glad you found this site everyone here is willing to help with your concerns and questions
Boxman,Moderator
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Welcome to our community, Tina! I understand exactly what you are going through. I even have a similar experience. My brother died after 10 years on dialysis 11 months before I was diagnosed and had to start. I wish now I had asked more questions and had been a bit more aware of exactly what he was going through, but for the last eight years of his life I was in another country. But this website was a godsend to me. [I even claim that it was started especially for me since it started the month before I was on dialysis!!] We are more than a website - we are family. :grouphug; Here is the place for information and support. So keep reading and keep posting. Let us know how you are doing. Vent and rant and rage whenever you need to.
Bajanne, Moderator
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:welcomesign;
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:welcomesign; I think many of us can understand the feeling of just wanting it to go away. We can't do that, but we can be here to give you support. This is a great site for information and for friendship. Looking forward to hearing more from you. Keep posting :cuddle;
paris, Moderator
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Hi Tina and :welcomesign;
I know just how you feel. It has been about a year and a half since I found out about my kidneys failing. I was hopeful that they would get better and still do to this day. I had kidney damage. I am back and forth. I am holding out hope that I can regrow my kidneys as they do continuously make new cells. I am working with a natural type person and she is hopeful or even confident that this will work. I still have a GFR of 72 so still have most of my function. Don't know if it will work, but by being here and learning what I can--I will be ready either way.
Good luck to you,
Normie
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Thanks again everyone.. I have been working hard to try to stay off Dialysis but, I know it will not be long. Mentally I am not sure how prepared I am for Dialysis but, Physically I am since I have my Fistula and I am ready...