I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Spouses and Caregivers => Topic started by: desperadosgirl on December 25, 2008, 05:43:00 PM
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Ron had another heart attack #6 Christmas Eve. One of the stents they put in in Oct started growing scar tissue. Doc says he WOULD be a candidate for bypass BUT he wouldn't make it. Heart has too much damage. MERRY FREAKING CHRISTMAS!!!!!! I don't want it to seem like I am on a pity trip but here's another thing. His doc said we would be home early today, the main docs came before 10:30 but we had to wait 5 HOURS for his primary (substitute) to show up and sign release papers and she didn't even do anything with him. Ron is very impatient, but what gets me most of all is that he was complaining all day of being cold chilling etc. When he got up to get dressed to finally come home he was nauseated etc, we told the nurse, they didn't check nothing after 10:00 this morning, well now we are home.. He has a 101 temp won't eat. Feels nauseated. Now we have checked his bag for cloudiness and for pesky lil things that require the heparin, and everything in that perspective is clear.. Hopefully it is just a 24 hour bug. We were suppose to go tomorrow for clinic and training for his new peritoneal machine but we may not make it. I feel so alone, not being able to actually talk to someone right now. He is trying to sleep but is very restless and what's really bad is: Deal or no deal is on and he doesn't even want to watch the girls.. THATS BAD for him. I'm about sick with worry Xanax isn't working.. I am so tired but I am afraid he will need me so I don't dare fall asleep. Sleep too heavy.. He even went for and hour yesterday with shoulder pain and in chest because he didn't want to wake me.. I love him so much, I'm just afraid he won't make it much longer. Maybe I worry toooooo much. Thanks for letting me join you alls group, at least I know there are caretakers out there going thru this too..
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I'm so sorry that this is what your Christmas has been. Life is not fair. I just want you to know that now that you're a member of this community you will always have people to talk to and ones that understand what you are going through too. We are all too familiar with the ups and downs, the highs and the lows and we don't like roller coaster rides either.
Sending you hugs and hoping that you both manage to get some sleep tonight. :grouphug; :cuddle; :grouphug;
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I have no advice to give you.
I just want to let you know that my hospital does the same thing. Once the nurses know that most of the doctors are saying we can go home, nurses, cna's do not come back to check on you. Discharge takes forever to do even after doc say's you can go home. It must be taught in nursing school to torment patients who are waiting to go home. But it's bad when they don't care if you are complaining.
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I hope Ron feels better - poor guy. Sorry about Christmas, that sucks. Best wises to you both. :cuddle;
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I hope you are looking at a better time soon. As was already said the rollercoaster rides are only fun at the amusement parks, not in real life!
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What a stressful time to have at Christmas. I hope tomorrow is better. :cuddle;
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I'm so to hear to hear this. I'm giving you a big hug. :grouphug;
EDITED:Fixed smiley tag error-kitkatz,Moderator
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:grouphug; Thanks guys. Today was a lil better. Ron FINALLY got to eat Christmas dinner tonight. He was even wantng to get out in the garage and work on the bikes late this afternoon. He can be so stubborn sometimes, which is good because that means he won't give up easy but he has to realize that he can't do everything he use to. He needs time to heal up from everything. Again :thx;
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:grouphug;
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:grouphug;
Hope Ron is feeling better today and you got a bit of sleep. Keeping himself occupied can be refreshing - just to have his mind totally involved in something other than his health for a time. It is all-consuming. As a caregiver to my mom, I try to help her balance her worries. She frets some days more than others.