I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: cmazure on December 25, 2008, 08:13:06 AM

Title: BK Polyoma Virus and Greetings from a New Memeber.
Post by: cmazure on December 25, 2008, 08:13:06 AM

Hello. My name is Caren, and I am new to this. I had a kidney transplant in 2005, but as of February, 2008 I experienced kidney failure again due to the BK Polyoma virus. This virus exists in everybody's urine, but only becomes symptomatic in people whose immune system is suppressed, including those who are maintaining organ transplants. I have been on dialysis, and getting treatment for the virus in hopes of becoming eligible for another transplant. I'd like t know what anyone else knows about this virus - such as getting blood levels low enough for having a transplanted kidney continue to function, and keeping the level low.
I also had a double lung transplant in 2001. My transplant related problems are originally due to tuberous sclerosis. I would also like to hear from anyone else who is familiar with that.
Happy holidays to all.

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: Razman on December 25, 2008, 08:21:07 AM

Its great that you joined and I hope that you will look around the site and visit often.  I cannot answer your questions but here is a site I posted in Internet Links.  The doctor may be able give some input.

http://ukidney.com/forum/

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: willieandwinnie on December 25, 2008, 08:28:56 AM

:welcomesign; cmazure. So glad you found us. We are a wonderful group with information and support for all you are going through. Please post often and good luck with getting on the transplant list fast.  :cuddle;

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: boxman55 on December 25, 2008, 08:47:35 AM

Welcome Caren, So glad you found IHD. I am sorry to hear about your failed transplant and hope you can get back on the list soon. Look forward to your posts

Boxman,Moderator

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: cookie2008 on December 25, 2008, 09:13:37 AM

 :welcomesign; :rudolph; :santahat;

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: Joe Paul on December 25, 2008, 01:35:27 PM

Welcome Caren, good to have you aboard.

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: jessup on December 25, 2008, 01:48:51 PM

G'day and  :welcomesign;

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: monrein on December 25, 2008, 02:23:06 PM

 :welcomesign; 

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: Romona on December 27, 2008, 10:22:34 AM

 :welcomesign;

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: Bajanne on December 27, 2008, 01:29:31 PM

Welcome to our community, Caren!  I am so glad that you found us and decided to join us.  I am not familiar with your particular situation, but we are all dealing with this renal challenge.  Hope you find answers.   This is a great site for information, for support and even for some good fun.  Keep reading and keep posting.  Remember, we are family now.  :grouphug;
Looking forward to hearing from you. :flower;




Bajanne, Moderator

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: pelagia on December 28, 2008, 05:32:53 PM

 :welcomesign;

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: Ang on December 29, 2008, 10:04:45 PM

 :welcomesign;  caren

Title: Re: BK Polyoma Virus and Greetings from a New Memeber.
Post by: paris on December 30, 2008, 09:28:23 AM

Caren,  you may know more about transplants than anyone.   Double lung and kidney!  What an incredible story you are living.  We are glad you joined this great site.  We all care very much for each other and give great support.  There is a wealth of information here and I think you can add to that.  Thanks for joining and please post often.  I would love to hear more of your story.    :grouphug;





paris, Moderator