I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: General Discussion => Topic started by: Roxanne610 on December 03, 2008, 07:35:12 PM
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Hello everyone,,,
I told my dad i would ask this question for him. He says some days he feels as though the food he is trying to eat wont go down. He has had every test done under the sun and everything came back ok, so I was just wondering has anyone experienced this symptom? He wears false teeth so he even took them out but that doesnt help...Were baffled just thought maybe someone knew something about this...
Roxanne
PS...Hope everyone is doing well Hugs and kisses to all....
xoxoxox
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Hey Roxanne, I don't have an answer for you but I can say that somedays for me I just don't want to eat I have no appetite then the next day I will be fine and eat regular. So I don't know what to tell your Dad except keep trying cuz we gotta eat...Boxman
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No answer either however I also can go for a week with no appetite but have to force myself to eat, now the dietician gave me the name of a protein liquid supplement that she says is very good in grape and only need 1 oz per day or whatever your dietician recommends. I ordered some yesterday as my protein is too low. It is LiquaCel Liquid Protein Supplement, 32 oz bottle for $36.50 in grape or orange..she said her patients like grape best. The company is Global Health, very nice customer service at 1 800 638 2870, they were out of the bottles but have 1 oz packets so are sending me 30 and said if the clinic orders it is cheaper so I'm going to ask them if they will order the next time. I like the idea of only having to drink one oz.
Ann
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There are other issues at play here as well, has he always been used to drinking with his meals? Fluid restriction - while necessary is a trained adjustment for your body. If he has had a lifetime of liquid with his meals, he may be having a harder time digesting. Smaller, more frequent portions may help while he gets used to this new restricted lifestyle and overall loss of appetite. (nausea is also a symptom)
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No he hasn't had fluid restriction,,,,somedays he eats little bits,,,somedays he eats and throws up,,,but yet his levels are OK, they say not enough to be on a renal diet...I don't know so confused we have three to five more weeks before he can start dialysis....I hope he is strong enough to make it,,,its rough because we have so many other issues as you all know.... :Kit n Stik;
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When I was pre-dialysis I went to see the dietician because I thought I would become malnourished. I never felt like eating. Half a piece of toast and I was done. Even that could take half an hour to get down. Normally I love my food and am careful to not eat too much because I don't want to be overweight. The dietician recommended renal protein supplement drinks. Suplena and Boost were the two I used. Be sure that you get a renally friendly one.
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Hello,,
Yes my mom did get him Suplena, the dietician said that has high calories..I know his symptom is so weird
dont know maybe just cause he cant eat..We have no idea...
today was a good day no throwing up...THANK GOD :cheer:
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When we don't eat much for long periods of time, the stomach can really shrink so that very small amounts fill us up. Also, loss of appetite and nausea, no matter what the blood work says, can make food very hard to swallow. Literally.
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oooh hugs and kisses from the lovely Roxanne... damn I wish I had an answer worthy of those special gifts :) :) :)
I can only agree with the other comments - specially about appetite... sometimes I don't feel like eating much at all, and I know I definitely eat less than I used to. The drinking thing is part of it, but I also just don't feel the urge/desire to have a huge massive meal...
but having said that I've never felt like bringing it up. Well I did throw up just the once since starting dialysis. That was like a year ago and I think it was a very minor case of food poisioning from something bad I ate .. I felt fine afterwards.. I was worried it would become a regular thing but it just happened the once. I told the neph and he wasn't too concerned specially when it didn't happen again.
Good luck to your dad... I hope things can settle down for him a bit...
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Not sure if this will help.... after my mom had been on dialysis for a few years, her appetite definitely got smaller and she never really ate much compared to before her kidney issues. But she also went through a period where she couldn't keep her food down, and they found she had gastritis as well as acid reflux. But they did prescribe Aciphex (as well as another pill that I can't remember) and after a few months she was back to normal.
Not sure if that would help your father but I wanted to throw it out there.
Good luck and hope everything gets back to normal :)
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Here is my :twocents; I am pre-dialysis; around 14% with creatinine at 3.2. I throw up all the time. Most days I have no appetite. It will be late afternoon and I suddenly realize I haven't eaten a thing all day. The vomiting always comes as a surprise. I can be sitting there and all of a sudden --- :puke; The past few days have been really bad. You would be surprised how many nephs or nephs nurses think it is caused by stress. But, transplant teams have told me it is all part of kidney failure. You are doing such a great job of finding information for your dad. It helps us when our families get involved. Thanks for being such a caring daughter :cuddle;