I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Transplant Discussion => Topic started by: kidney4traci on November 28, 2008, 04:58:45 AM
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I am so excited! We are approved for Ryan to donate to me and the date is set for Feb 3rd! I have to do cellcept one month prior as well as rituximab - an IV for 6 hours. Anyone go through this? I would love your feedback on the details of everything... from what to expect to what to pack! I can't believe it will finally happen!! Over 4 years on dialysis... can't remember what non-dialysis feels like! :bandance;
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:clap; :2thumbsup; :bandance; Im so happy for you :grouphug; Carol
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Excellent news. I'm so glad for you :2thumbsup; :yahoo;
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:bandance; :yahoo; :2thumbsup; kidney4traci. I'm going to pray that the time goes by fast. Congratulations. :cuddle; :clap;
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:bandance; :beer1; :clap;
I am so excited for you!!!!!!
Lori/Indiana
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So exciting. I'm hoping for my transplant around the same time but nothing is finalized as yet. No one has so far mentioned starting the immunosuppressive drugs prior to the surgery but I'll let you know if they do.
Wishing you guys all the best and I hope the wait doesn't feel like an eternity. :cuddle;
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Congratulations! What wonderful news! :bandance; I didn't have to do any treatments prior to transplant. I hope all goes well in that area.
As far as packing, I took a pillow, blanket, bathrobe, cell phone, charger, lite make-up, face cleansing items, etc. My donor brought a ton of magazines for us to browse through. In my hospital they had the most horrible, hard, tiny towels! I suggest you take a nice fluffy towel for after showers. I wish I had taken one with me!
I cleaned my house pretty good before transplant. My husband wasn't allowed to use the hall bath while I was gone so that there was at least one good, clean bathroom. He did a pretty good job at keeping the house picked up before I came home. He was sure to have all the dishes out of the sink and the trash taken out.
I'm very happy for you! I wish you the best! Keep us informed on all that is to follow!!!
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:bandance; I am so happy for you!
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:yahoo; Whoo Hooo traci! Great news!
I have not heard of that pre-surgery protocol. Jenna had IVIG and plasmapheresis the day before the surgery because she had a mild B cell sensitivity in the final crossmatch. Do you have a similar situation?
4 1/2 weeks away - that is so exciting!
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Great news Traci.
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Thanks Kelly... that helps alot!!! OKarol - I have to do the IVIG but not the plasmaphorisis.
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:bandance; :bandance;
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Congrats Traci,
As far as the meds go, with CellCept, expect frequent flyer miles to the washroom. It may or may not happen, but CellCept does cause that to happen until body adjust to it. Some people can not tolerate it, so if there are problems, let the doctor know asap.
No idea about the other med, but my transplant was not timed, but did have the IVIG.
Good Luck to the both of you.
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I just want to say I may hate dialysis but I LOVE the people on this site!! Thank you for all your responses!! You Rock!!
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Oh yes Chris, good advice! The CellCept definitely keeps you "busy" on the potty! With the stomach cramps to match! Mine is getting a little better, but still crampy. So far I'm not having any problems with the Prograf, but a definite "yes" on the CellCept!!
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Head the warning of CellCept, the eat 2 hours after taking med or take med 1 hour before eating. Just invest in T.P. if left over T.P., just have aT.P. party on someones house :rofl;
Sad part is I wish that were true.
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I am so so so happy for you!!! That is the best news I have gotten all week! YEA!!!! I know you are excited to put it mildly and I can't wait to hear all about it....
Beth
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congrats on the transplant date, i know it cant come soon enough.....i was instructed to take cellcept the day b4 transplant and of course still taking it!! God Bless You!!
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:cheer: :cheer: Yeah Traci Woohoo :cheer: :cheer: :cheer:
That is wonderful news! I wish you and your donor a smooth transplant.
Maybe come March you can finally "live on your Boat" :flower;
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:yahoo; :2thumbsup; :clap; :yahoo;
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I am very happy for you. Congratulations Tracy. :beer1;
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Great news--congratulations!
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:bandance; :bandance; :bandance; YAY!!! :bandance; :bandance; :bandance;
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:yahoo; :yahoo; :yahoo; :yahoo; :yahoo;
I saw your message over on the Secret Santa thread and came looking for an "official" thread. This is the greatest of news.
Stephen didn't have any treatments in advance of his hospitalization. But, he was admitted the night before and I am not sure what they gave him then. I will check. Also, he didn't seem to have any major problems with any of the drugs. But, maybe I missed it because I am big on stocking extra toilet paper anyway. ;D
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:yahoo; Just caught up with this and it's great news to start the week, in fact the new month, with (it's 6.30 a.m. Monday 1 December here)
I pray that all goes well. :cuddle;
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That's terrific news Traci. I hope the next couple of months flies by for you. With all the festive season inbetween, I am sure it will. All the very best. x
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That is so exciting! It might be too late to post on this particular topic, or maybe the wrong place in general, but since you said you live in the Houston area, I was wondering where you're having your transplant? I'm starting my PD training next week, and I've just started the ball rolling to get on the transplant list, and am going through Methodist Hospital in Houston. It sounds like there are lots of evaluation tests. It's feeling very overwhelming. Again, I'm so excited for you!
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I too am working with Methodist. The team there has been great so far. I have worked with them since 2005. Good luck with the PD. I do home hemo. Who's your neph? Do you do training at a davita center? If so, which one?
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Traci I'm so excited for you!! Only about a month to go - 2009 will be a great year for you!
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Yes, I'm going to be doing my PD training at the Davita Center in Conroe. I live up here in Willis, but I just found out that with my insurance, I have to use Hermann or Methodist. We had some bad experiences with Herman, so I've chosen Methodist; I'm so glad that you've liked them - that helps! My neph is Dr. Neeland, also in Conroe. I guess I'll have to have a different one during the transplant proceedings, and then back to Neeland up here when I come home. Obviously this is all in the future (I hope!), but I'm just finding things out now. I'm still not sure of ANYTHING. lol
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Y'all should start a local IHD chapter!
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Traci and I are planning a get together hopefully in January! Although, we may have to wait for post surgery!
Please tell me where the Methodist Hospital is (address) you'll be at for transplant.
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I know I am late... sorry....
:cheer: This is fantastic news! :cheer:
:flower; I am so excited for you! :flower;
As for meds, I take Myfortic - so far it isnt toooo bad.... Rapamune - really slows down healing, but it is supposed to be alot easier on the kidney than Prograf...... Prednisone which has given me the most side effects ( :stressed; ). Are you going to have to take Prednisone very long?
Humm... what to take... books, games, laptop if you have one, your favorite shampoo and conditioner, lotion, hand sanitizer, a nice big comfy robe preferrably with pockets, cell phone.... hummm I hope thats it :)
Edited: Fixed smiley error - okarol/admin
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Wonderful news! :yahoo; :yahoo; Please know that your IHD family is with you all the way :grouphug; You are in my caring thoughts and prayers. :cuddle;
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:thumbup; Congratulations
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I also took a pretty lime green fleece blanket and my hot pink robe. I had a green neck pillow that matched the blanket and my own pillow. The colors alone made my room so cheery! Every commented on it when they walked in or by my room. Color helps when you're in the hospital!
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:yahoo; only 1 month lefy :yahoo; i'm so excited for you
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I am so excited it is getting closer!!!!! I go in for my infusion this Wednesday! :clap; :clap;
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:clap; I m so excited for you.
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I am so excited for you. This is wonderful news and the time is just around the corner so good luck and keep yourself healthy.
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CONGRATS Traci, you sure have done your time on dialysis, I know you will be awesome at post dialysis :flower;
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:bandance; :bandance; :bandance; Congrats (a little late)! This is awesome news!!!
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Oh man, it's so exciting - time will fly by - my advice would be to take lots of pictures, even if they seem unimportant now. I wish I had taken more - I was just so distracted by emotions - I am so happy I have a few pictures. Each one I look at reminds me of the challenges and the triumphs - lots of feeling going on - and what a wonderful experience it all has been.
Best of luck! :cuddle;
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:cheer: :cheer: Woohooo Traci
It's getting closer and closer. I hope everything went well with the infusion.
What a great way to start the new year. :clap; :cuddle;
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Thanks Wattle - the infusion was fine, a bit long of a day but no reactions. I started the cellcept too, 4 in the morning and four more at night. No reactions there either. However we did a family workout yesterday and I think I did too much! I stayed in bed all afternoon with an upset stomache and really tired. Cellcept? Anyway, 15 more dialysis treatments left!!! :bandance;
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:yahoo; :yahoo; :yahoo; :yahoo;
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*smile* Good Luck!
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Tomorrows the day and I hope it all goes well, whiphee :2thumbsup; I can't wait for the updates..
H
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:2thumbsup; Best wishes Traci! And to Ryan too! :grouphug;
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:bandance; :bandance; :bandance; :bandance; :grouphug; :grouphug; :grouphug; :grouphug;