I Hate Dialysis Message Board
Dialysis Discussion => Dialysis: Home Dialysis => Topic started by: chrisdakidd on August 19, 2006, 07:02:40 AM
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I'm new to the site, but have been doing home dialysis for two years. I started on a cycler and had painful drains at times, had to set up a bed in my livingroom because the hospital wouldn't spring for extra patient extension lines. That caused me to have to do my nightime business in a receptacle other than a toilet. I hated being hooked up for 8 hours at a time. We live in the country and we had a small brush fire outside one night and my wife had to take care of it because I couldn't leave my 8 feet of umbilical cord. I decided to go ol school and try the bags with the y-sets from Baxter, or CAPD, and I have been so much happier because of it. I would suggest it to anyone who has a choice. I have a commute to and from work and I do two exchanges in the car, leaving one to do before bed. It has been so easy. I have also seen discussion on the board about convenient, transpotable machines...not a concern without a machine. Also I do PD 27/7/365 with the bags and I have felt much better. I have four kids to help out with and I am more capable with the 24 hour sessions than with the 8. Just wanted to share my experience that it may help someone else.
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You should introdice yourself in the INTRODUCTION thread ;)
I have been on both. I found the 4 times a day every day so repetative (CAPD) and enjoyed the 8 hrs (for me it was 8hrs and 45 min) every night instead(CCPD). But each person has to decide what is best for theirselves.
Do you use Baxter or Fresenius?
Here I am when I was doing CAPD (4 times every day) and the other picture is what my CCPD Cycler looked like. (Both are Fresenius)
My hospital has just recently switched to the Baxter system but I had already switched to Hemo by then (which I am on the Fresenius 2008k)
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Hi Chrisdakidd, So happy you found us, Welcome!! Yes, please go to the introduction section and tell us a little more about you. I am glad PD is working out for you, it surely didnt for me, i am what they call a "high transporter" so they switched me to the cycler and i love it, but i can understand how you wouldnt of liked it without the extensions, i am surprised they didnt give them to you especially if they knew you couldnt reach the bathroom, shame on them, hmmph!! But anyways, i am so happy you are here and we look forward to hearing more from you.
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You should introdice yourself in the INTRODUCTION thread ;)
I have been on both. I found the 4 times a day every day so repetative (CAPD) and enjoyed the 8 hrs (for me it was 8hrs and 45 min) every night instead(CCPD). But each person has to decide what is best for theirselves.
Do you use Baxter or Fresenius?
Here I am when I was doing CAPD (4 times every day) and the other picture is what my CCPD Cycler looked like. (Both are Fresenius)
My hospital has just recently switched to the Baxter system but I had already switched to Hemo by then (which I am on the Fresenius 2008k)
Hey Angie.....is that a pink bong on your dresser (top right of picture) ? ;D
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Maybe that is why Canadians are always so mellow...... ;)
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I had to check that out again, since you asked, lol, i believe its a lava lamp
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Yeah, I had to check it out again too! Thought angieskidney was up to naughties for a minute there!!! ;D
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Heyyyyyyy, Dr. Evil? what do YOU know about BONGS?? ;) I knew i liked you at hello :)
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Hey.....I went to college..... ;D
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A Doc that went to College :o Are you sure it was not kitkatz sixth grade class ;D
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Yes, goofynina is correct, it is a LAVALAMP :P I have never owned a bong in my llife even though I have seen them. :P The funny thing is that when I bought that lava lamp it was blue. :P It is one of those glitter lamps actually.
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To think I spawned a Nephrologist!!!
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I definitely preferred CCPD, the Gambro cycler was excellent, except for a for things. I was able to disconnect to go to the toilet or whatever during the night. However they never sent me enough disconnect caps, however much I told them I NEED more. The machine was on a trial and I did have quite alot of technical problems with it. If I could of just got past the tech problems and the lack of caps, it really was a great machine. I totally hated doing the bags during the day, it was so disrupptive. And at times I would be out for the day and time would get away from me and I would realise the fluid had been in me way too long, so I would be rushing home to do a bag and find that I had retained some of it.
One thing I do miss about PD is the freedom.
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retaining some of the PD fluid .. I have a REAL interesting question. Have any of you retained the fluid and then were plagued with the runs? My Neph told me that the dialysate can NOT soak into your intestines or colon but I have always wondered about that as a contributing factor to my peritonitis that they still can't tell me what it was caused by.
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If you are constipated, there is a risk that faecal matter can pass across the membrane and into the peritoneum which can cause peritonitis. That is why its so important to keep regular whilst on PD. I used to get the runs a lot after I had filled, if the bag was a bit cold. Im not sure about the fluid passing into the bowel, I dont think it would be able to cross the membrane, if it could there would be trouble!
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If you are constipated, there is a risk that fecal matter can pass across the membrane and into the peritoneum which can cause peritonitis. That is why its so important to keep regular whilst on PD. I used to get the runs a lot after I had filled, if the bag was a bit cold. I'm not sure about the fluid passing into the bowel, I don't think it would be able to cross the membrane, if it could there would be trouble!
Yes, but since constipation could cause a problem I wonder if the runs (for an extended length of time) could cause a problem too! I really wonder about this because I have a feeling it may have contributed to my peritonitis! I can't be sure however since I am no doctor :P *hint hint* Doc?
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If you are constipated, there is a risk that fecal matter can pass across the membrane and into the peritoneum which can cause peritonitis. That is why its so important to keep regular whilst on PD. I used to get the runs a lot after I had filled, if the bag was a bit cold. I'm not sure about the fluid passing into the bowel, I don't think it would be able to cross the membrane, if it could there would be trouble!
Yes, but since constipation could cause a problem I wonder if the runs (for an extended length of time) could cause a problem too! I really wonder about this because I have a feeling it may have contributed to my peritonitis! I can't be sure however since I am no doctor :P *hint hint* Doc?
Having the runs may help with volume control, so it may not be all that bad ;)
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Im not real sure angie, have never heard of that happening. Dont forget about all the crap in the air, lots of bugs there as well.
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Having the runs may help with volume control, so it may not be all that bad ;)
Doesn't one lose nutrition when they have the runs? :-\
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Having the runs may help with volume control, so it may not be all that bad ;)
Doesn't one lose nutrition when they have the runs? :-\
Yeh, mostly potassium I think. I had to go on potassium tablets when I was on PD. I didnt go a day without throwing up for 6 months, probly more, cant remember. Plus you dont want to get dehydrated.
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I think it may be more than just potassium. Perhaps it all depends on where in the intestinal tract it began ... after absorption and past the small intestines??? :-\
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Does anyone get nausea with pd?
My husband been that away, since he started doing pd.
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I started capd in mid-April and ccpd in mid August.
I do not have nausea. I do have to take potassium tablets.
It was on the low side anyway from bp meds and the dialysis lowered
it even more.
When I was on capd if I had longer dwells I absorbed the fluid.
I was gaining weight and my legs and feet were swollen. As soon as I
quit doing an overnight dwell the swelling went down and the weight.
On the ccpd I go dry during the day to prevent absorption. I prefer the ccpd for me.
Frees up days and don't feel so rushed all the time.
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Does anyone get nausea with pd?
My husband been that away, since he started doing pd.
I did it for 4 years and never got any nausea. I guess everyone is different ..
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Does anyone get nausea with pd?
My husband been that away, since he started doing pd.
See my previous post