I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: Trouble008 on October 27, 2008, 11:23:21 AM
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I started Hemo dialysis in the middle of May 2008 when my kidneys decided to fail. I was in the hospital for almost 4 months before they let me out. It took the doctors a long time to figure out what was wrong with me and to this day they are unsure why my kidneys failed. My platelets were to low at the time to do a biospy so they decided not to do one. During the last few weeks of my hospital stay I stared looking into PD and decided that this might me a better choice for me. Now it has been just over a month on PD and I HATE IT! I hate being connected to a machine every night for 9 hours, you would think that being in bed for that long you would get plenty of sleep. NOT the case I can't sleep at all with out taking a sleeping pill and even then I only get a couple of hours.
I have tried going back to work, but it has been really hard. Getting up in the morning seems to be the hardest, I constantly think of reasons to stay in bed. But the reasons just don't go away as much as I try to ignore them or pertend that I am ok. Don't get me wrong I love my job and where I work, I am just finding it hard to be there and that is were I want to be. I am usually to busy to think of being sick, but then I pay for it later as I get so tired.
I've been having a hard time keeping my mood up as well. I am just so tired of all of this and just wish that things would go back to normal, but then again I forget what normal is since it has been so long. I am glad I came across this site as now I know I am not making these symptoms up and it is just not me who feels so tired ALL THE TIME.
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:welcomesign; :waving;
Welcome to IHD.
Well you paint a vivid picture. Stay strong and be glad you are still working. many cant work but would love to be working.
plenty of good support here. I hope in time things will get a little easier for you.
P&K
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:welcomesign; Trouble, You have found the perfect site for information and support. We are glad you found us and we hope to hear more from you. My husband lost he's kidneys in 2001 and hasn't worked since. Have you checked into disability? When you need your mood brightened, come here. We are great with moods. :cuddle;
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Glad you came aboard!
:beer1;
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:welcomesign;
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Welcome Trouble, good to have you aboard.
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Trouble try to not eat the Whole Elephant. Just one day at a time one bite at a time. Work on your sleeping habits first. If you just can't stand PD then get a Temp Catheter put in your chest and try Hemo. I think you'll like PD once you try Hemo. Try and make your bed more comfortable. Soft pillows, TV with remote, snacks. Keep working. That is the only "normal" part of your life you can hang on to until you get use to this.
Best of luck and I'm glad you found us. :welcomesign;
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I tried hemo for the first 3 months while in hospital and 3 weeks when I was released. I don't mean to sound so negative, usually not my style. I'm just having a hard time coping with this since it was so sudden. One day healthy and active the next day flat on my back in the hospital. There was no leading up time. And know around me seems to understand what i am going through, which makes it even harder.
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I tried hemo for the first 3 months while in hospital and 3 weeks when I was released. I don't mean to sound so negative, usually not my style. I'm just having a hard time coping with this since it was so sudden. One day healthy and active the next day flat on my back in the hospital. There was no leading up time. And know around me seems to understand what i am going through, which makes it even harder.
It is okay to be "negative" That is why I'm here! If you don't have anything "nice" to say sit by me!
None of your family or friends will understand. Come here to vent, ask questions and get answers.
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:welcomesign; Trouble008. You've found the best place to be , given the circumstances you find yourself in. You don't have to be anything other than exactly how you're feeling at any time of any day. The "normies" (normal, healthy people) out there, try to understand I think but it's almost impossible for them to really get it. We do get it however and we'll always listen when you need to rant. Post often and I hope we can help a bit by lending our support. :cuddle;
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Welcome to our community! It is clear that this is the place for you to be. Here you are with people who TOTALLY understand what you are going through. This is where you will get lots of helpful information, loads of caring support, and barrels of fun. [just stay away from the Politics thread!! ;D]
I trust that things get much better for you, as it did for me. Until then, keep on keeping on. Keep posting and letting us know how you are doing.
Looking forward to hearing from you.
Bajanne, Moderator
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Thanks for the welcome all! I was hoping to chat with someone but it doesn't seem like anyone goes in there...
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What am I chopped Liver!~ >:D
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No, no not at all you just had to leave to quick....:)
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it is like I wrote that
I feel just like you
we understand at IHD
we care
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:waving; :waving; :waving;
:welcomesign;
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G'day trouble!
It's a massive change that has been thrust on you and it will take time for you to get used to and adjust (unfortunately). I think what might be important to focus on is what is positive in your life rather than negative. So by that I mean your work, family, friends etc. It's so draining and difficult dealing with kidney failure I understand that's why it's important (I feel, anyway) to focus on things that are good in your life. I really enjoy being able to work and focusing my energy and mind on that - it takes it off the less fun aspects of life.
Anyway I'm sure the bright crew here can help even as a place to vent.. so welcome!!
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G'day Mate!!! (I'm not from Australia, but I love the way that sounds!) ;) RichardMel says it so much better than me. :'(
Welcome to IHD! You have landed in the softest spot imaginable! You will get the facts. You will get to rant. You will get the answers. You will get the comfort. You will get the joy. This is a one-stop shopping site!
:welcomesign; :flower;
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Hi Mr Trouble,
Dont trouble, troubles, until trouble troubles you..... ;D ;D
Life must go on, I have 6 children, 2 marriage, 4 still studying.... they need me, although I'm having kidney failure..... dont give your life away... we knew, somebody needs you too...
So stay with us.... be cool... be our IHD family.... :clap; :2thumbsup;
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sorry about your troubles, but do understand how hard it is when it blind sides you. Pray things get easier so you can see it is possible to live a normal productive life still. We are here for you...
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:welcomesign;
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Trouble :welcomesign;
This is the place for you to be. I'm not sure what time zone you are in but I have been in and out of the chat room, especially at night. I haven't seen anyone else there when I look so I will start looking for you if you are up when you can't sleep. Insomnia has been my unwelcome friend for many months now and even tho drs said it would get better with dialysis. ??? I guess I just haven't adapted yet. Come say "hi!" and I will listen to anything you have to say. You are not alone and we are here when you need us. :grouphug;