I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: trojan ska on October 07, 2008, 08:29:17 PM

Title: dialysis possibly any day now. Wanted to say hello
Post by: trojan ska on October 07, 2008, 08:29:17 PM
Hi everyone. My name is Scott and I am a 36 year old male Lupus patient who is staring down the next big change/challenge of my life very soon here.

I've had kidney involvement since my mid 20s but my Lupus came back in Jan 07 to finish off the kidneys for good. Despite the Lupus going into a 'quiet' state my kidney's function and capability have deteriorated from then until now.

I currently have a creatinine of 5.0 BUN 49 GFR 15 potassium 4.5 sodium 140 and phosphorus 4.5

I am currently employed in a high stress environment at a nationally leading home builder. As one can imagine; Job security is not looking very good in a performance based sales environment in an industry that has has been doing nothing but downsizing for the last three years.

I still feel that I am very fortunate and blessed despite my illnesses and outlook. I have family that want to help donate so I would like to stave off dialysis so I can explore the possibility of a transplant. Unfortunately I cannot make the donor qualification process work any faster or make my company stop letting people go. I can control what I eat though (not always so easily though) and can think positively as well.

I think I am a lot less active as I have lost 30 lbs and have anemia. (went from 150lbs to 120lbs) I was never a big guy to begin with since I stand 5'8". I feel fairly confident that I can maintain my sodium and potassium within decent levels despite my creatinine.

I hope to meet good people who would like to share their ESRD experience  with me as I would like to do more of the same.
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: paris on October 07, 2008, 08:36:35 PM
Hi Scott,  we are very glad you joined us.  There is a lot of information here from people who know what you are facing.  This is a really good place to find answers and for support.  You have a great attitude and I am sure there is much you can share with us.   Looking forward to getting to know you.







Paris,moderator






Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: monrein on October 07, 2008, 10:37:43 PM
 :welcomesign; Scott.  Glad you found us and I hope you'll post often so we can know more about your experiences.
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: Mimi on October 07, 2008, 11:12:35 PM
Hi Scott and welcome to IHD.  Come right on in and make yourself at home.

Mimi
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: circleNthedrain on October 07, 2008, 11:46:33 PM
Welcome Scott!
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: Joe Paul on October 08, 2008, 12:07:37 AM
Welcome Scott, good to have you aboard.
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: cookie2008 on October 08, 2008, 04:45:15 AM
 :welcomesign;
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: Romona on October 08, 2008, 04:47:38 AM
 :welcomesign;
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: devon on October 08, 2008, 06:06:29 AM
Welcome aboard Scott.  Glad to have you.

I'm sorry your job is adding to the stress of all this but you seem quite capable of handling it as best you can. 

We're here to help in any way we can.

-Devon
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: trojan ska on October 08, 2008, 06:30:29 AM
Thank you everyone. I appreciate the warm response and look forward to asking some questions.

I can only imagine that the wealth of knowledge on this forum far surpasses a 5 minute nephrologist visit where the doctor shuffles you in and out of his office as quckly as they can...
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: willieandwinnie on October 08, 2008, 06:32:38 AM
:welcomesign; Scott. You have landed in the best spot for information and support. Hope we hear lots from you.  :cuddle;
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: xtrememoosetrax on October 08, 2008, 06:36:13 AM
 :welcomesign; Scott. Nice intro; I'll be looking forward to hearing more from you.
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: boxman55 on October 08, 2008, 04:59:49 PM
Welcome to IHD please keep us posted on how you are doing

Boxman, Moderator
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: twirl on October 08, 2008, 05:05:36 PM
hello and glad to know you and good luck
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: Bajanne on October 18, 2008, 08:19:15 AM
Welcome to our community!  So glad that you found us and decided to join us.  This site will  be one of your weapons in your battle with this renal challenge.  I know it has been mine.

[quote author=trojan ska link=topic=10392.msg176882#msg176882 date=1223472629
I can only imagine that the wealth of knowledge on this forum far surpasses a 5 minute nephrologist visit where the doctor shuffles you in and out of his office as quckly as they can...
Quote
Though we do not and cannot claim to be medical professionals (and we need them), our claim is that we have been there, done that.  We have the insight of those who are actually living this experience, and this is what qualifies us to share with others.
So keep reading, keep asking, keep posting.  You are with family now. :grouphug;
Looking forward hearing from you. :flower;



Bajanne, Moderator
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: pelagia on October 18, 2008, 01:17:48 PM
 :welcomesign; Scott!
Title: Re: dialysis possibly any day now. Wanted to say hello
Post by: jessup on October 18, 2008, 05:06:36 PM
 :welcomesign; :welcomesign;