I Hate Dialysis Message Board

Introduction => Introduce Yourself => Topic started by: Noahsmum on October 07, 2008, 01:06:10 PM

Title: New to PD for the past 3 weeks..
Post by: Noahsmum on October 07, 2008, 01:06:10 PM

Hi All
My son had his PD catheter fitted just over 3 weeks ago (he's 12) and we are still riding the rollercoaster that is now our lives!
He has already had his first bout of peritionitis, then had an allergic reaction to the antibiotics (gentamycin & vancomycin) that they used to treat him, we finally came out of hospital last week and he still isn't 100%.
He has had a negative UF 300+ the last 2 nights and he had a large bit of fibrin in his drain bag after his initial drain tonight, bit of a tummy ache (although he has been a bit constipated), no temperatures , his weight and BP are normal...we have clinic tomorrow, so will check all this out with the docs then, just really worried he'll have to go on heamo....

Thanks for listening!  Amy-Noahs Mum x

Title: Re: New to PD for the past 3 weeks..
Post by: okarol on October 07, 2008, 01:10:46 PM

Welcome Amy.  :welcomesign;

Sorry about Noah's problems. I hope they can sort them out.
My daughter began hemo at 18 years old - she couldn't do PD due to prior urinary/abdominal surgery.
It worked fine for her.
Hang in there.  :cuddle;

Title: Re: New to PD for the past 3 weeks..
Post by: willieandwinnie on October 07, 2008, 01:21:00 PM

:welcomesign; Amy. I'm so sorry about your sons problems. I hope you get answers tomorrow. This is a great site for information and support and we hope to hear more from you. Have Noah join us.  :cuddle;

Title: Re: New to PD for the past 3 weeks..
Post by: monrein on October 07, 2008, 02:28:34 PM

I'm so sorry that Noah is having such a tough time and I really hope that things get themselves sorted out soon.

Title: Re: New to PD for the past 3 weeks..
Post by: pelagia on October 07, 2008, 03:42:40 PM

 :grouphug;

Title: Re: New to PD for the past 3 weeks..
Post by: rookiegirl on October 07, 2008, 04:18:13 PM

Hi Noahsmum,

I've been on PD going on 1 year this coming October 22, 2008.  The 1st 4 weeks was very hard.  The 1st time I drained during the PD Training, I had lots and lots of fibrin. The PD Nurse injected in my solution Heparin and that helped.  I haven't had any problem with fibrin since then.

I pray that Noah will get better with PD as I did because now, I'm really doing well with the treatment.  I wish you both the best.

Title: Re: New to PD for the past 3 weeks..
Post by: paris on October 07, 2008, 08:44:17 PM

Hi Noah's Mom,   First, I am so very sorry that Noah is dealing with this at age 12.   Children shouldn't have to worry about their health.   Second, I am glad you joined us.  You will find so much information here.  And everyone is always ready to help when you have a question.   On days when it all seems to much to handle, members will quickly give a shoulder to cry on.  We are all here for each other.  Welcome to our family  :grouphug;





Paris,moderator

Title: Re: New to PD for the past 3 weeks..
Post by: Joe Paul on October 08, 2008, 12:10:19 AM

Welcome Noahsmum, good to have you aboard.

Title: Re: New to PD for the past 3 weeks..
Post by: Romona on October 08, 2008, 04:46:37 AM

 :welcomesign; Amy.

Title: Re: New to PD for the past 3 weeks..
Post by: devon on October 08, 2008, 06:08:52 AM

Welcome Amy and Noah!

I'm am sorry y'all have to be going through this! Being 12 is not the time one would pick to be on PD!  I hope you find comfort and peace here.  We'll be happy to do what we can to help.

-Devon

Title: Re: New to PD for the past 3 weeks..
Post by: peleroja on October 08, 2008, 07:58:42 AM

Welcome aboard, Amy.  I've been on PD for 5 years  Hang in there and keep us posted about Noah.

Title: Re: New to PD for the past 3 weeks..
Post by: boxman55 on October 08, 2008, 04:58:05 PM

Welcome Amy, please keep the faith. We all want your son to get past the troubles and do better. Please post so we know how you all are doing

Boxman, Moderator

Title: Re: New to PD for the past 3 weeks..
Post by: Noahsmum on October 11, 2008, 10:52:17 AM

I'd first like to say a very BIG Thankyou for making me (us) feel so welcome, we have had another rollercoaster week, after clinic on Wednseday Noahs white cell count had shot up again to 28, 000!
He still has symptons of peritonitis with yucky coloured fluid on his initial drain so they have started him on a 10 days course of cefataxin..fingers crossed this will knock the bug on the head!
Otherwise he may have to have his catheter removed  :(
Luckily he still has some kidney function left to go a few weeks without any dialysis but then they would have to put him on hemo which is going to be a nightmare travelling 50 miles 3 days a week, not to mention what i'll do about work and my other son....

Once again, thanks for being able to rant to people who know exactly how we feel
Amy & Noah
xxx

Title: Re: New to PD for the past 3 weeks..
Post by: monrein on October 11, 2008, 12:29:34 PM

Sending you and your boys hugs today.  I really hope they can get Noah's infection cleared up so he can get back on track.  :grouphug;

Title: Re: New to PD for the past 3 weeks..
Post by: Ang on October 11, 2008, 11:31:23 PM

 :welcomesign;

Title: Re: New to PD for the past 3 weeks..
Post by: Bajanne on October 18, 2008, 07:55:05 AM

welcome to our community!  so sorry for the great challenge you and  your family are facing.  You gave your son a good name.  I trust he will make it through the flood and come out victorious.  Please consider this  your new extended family.  We are here for you all. :grouphug;  My caring thoughts and prayers are with you at this demanding time.  Feel free to rant, vent, rage as much as you need to.
Looking forward to hearing from you.


Bajanne, Moderator