I Hate Dialysis Message Board
Introduction => Introduce Yourself => Topic started by: TK101 on September 29, 2008, 04:30:25 PM
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Hello All,
I am a 36 year old insulin dependent diabetic just recently diagnosed with ESRD. I have had diabetes for over 25 years and always kinda knew kidney failure was in my future. My kidneys really started to show signs of strain a year or so ago, and my nephrologist and I hoped I would make it to transplant without hitting dialysis, but hear I am with a new PD catheter.
My PD catheter was placed on Friday, I was expecting pain from the slight cutting and manipulations of my abdomen (it was a laproscopic procedure), but no body told me about the CO2 gas they use to inflate your abdomen and the pain it causes as it "vents" through your tissues! My right shoulder still slightly hurts. It really sucked, I left the hospital about 2pm and was unable to keep any pain medication down until about 11pm, I could not sit or lay down until 2 am as the pain would get much worse in my shoulder/abdomen when I was not standing. So basically I was pacing around until 2 am. Nice.
This morning I got my catheter flushed out and dressings changed. So far no signs of infection and everything looks ok. It looks like I will be the first one in the dialysis clinic to be trained to use the new Fresenius Liberty cycler. Its funny, I got a handout which shows what the new cycler looks like, but no pictures seem to be available online anywhere, even at the Fresenius website.
Anyhow I look to be starting on PD in about 3-4 weeks, with the plan being multiple organ transplantation (kidney and pancreas) sometime in the near future.
TK101
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:welcomesign; to IHD. Lots of experience here with all aspects of ESRD and dialysis.
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:welcomesign; TK 101, We are glad you joined us. There is so much information here and many members who do PD. Everyone is always ready to help each other, so if you have any questions, please ask. This is also a wonderful support group. Looking forward to hearing how things progress in the next few weeks.
Paris,moderator
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Welcome to IHD Glad you are here
Boxman, Moderator
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Welcome to IHD TK101,
Thank you for introducing yourself. It is sometimes a difficult thing to tell about yourself and you did a great job. Sorry about the kidneys finally quitting. You have come to the right place for information and great advice. I hope you continue to check back often, read and ask questions if you have any. Maybe we will see you in chat sometime. Enjoy the forums and I'm sure you will make many friends during your stay.
Sluff/Admin
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Welcome to the group. I've been on PD for 5 years. If you have any questions, please feel free to ask!
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:waving;
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:welcomesign;
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Welcome TK 101, good to have you aboard.
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Welcome. I have Type 1 as a well, looking for that Kidney/Pancreas combo as well.
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:welcomesign; TK101. We are a great group. Lots of information and support. Let us know how you are doing. :cuddle;
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:welcomesign;
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Hi, Im new here too. :welcomesign;
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:welcomesign;
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Welcome TK101!
Please let us know your experience on the Liberty cycler! (perhaps under the Home Dialysis section) I tried to find info about this new cycler online but couldn't find much...wondering what new functions/features this machine has.
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:welcomesign; Glad you found this site and hope PD works out for you as it has done for me. :cuddle;
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TK101,
:welcomesign; to IHD and :welcomesign; to PD. I've been on PD going on 1 year this coming Oct. 22th. I'm doing well on the treatment. Best of luck to you.
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:welcomesign;
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A belated welcome to our wonderful community! i suppose by now you have discovered what a wealth of information and support it is. Just keep posting, keep reading, keep asking questions. remember you are with family now :grouphug; Keep us informed on how you are doing.
Bajanne, Moderator
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Glad your catheter surgery seems to be settling down. There are quite a few of us on PD on this forum so if you have any questions just post and you'll be surprised how many replies you'll get. If you can, please post some pics of the new Fresenious Liberty machine.
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Welcome aboard - nice to meet you. I did PD before my transplant and found it very manageable.
I look forward to your posts.
Sandyb
:bunny:
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:welcomesign;
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:welcomesign;
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One reason that information on this cycler is hard to come by is that Baxter has sued Fresenius for patent infringement regarding this product and I think Fresenius is reticent to publish very much information about it. That also probably means that if Baxter wins, this product would be withdrawn from the market and you would have to retrain on another piece of equipment.
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:waving; :waving; :waving; :waving;
:welcomesign;
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Hi There....I read your post. Seems very simiilar to me. I am 38 and got put on hemo back in march of 2008. In oct i switched to FMC here they offered PD. I had the surgery and started PD a little over a month ago. It was the best move I could have ever made. Basically my life is somewhat back. It is kind of a pain right now having to do manual exchanges 4 times a day. I start on the Liberty next monday and am looking fwd to it. If you have not started on PD yet, you will love it. well, love it in the sense that you have the control and flexibility. it sure is nice not being on fluid restriction anymore...:-) after a few weeks I started to feel much better than i did on hemo. it used to make me sick. with PD the only thing is that everynow and then, I would say maybe 3 times in 6 weeks you get shoulder paiin during an exchange but it subsides within a few minutes....let me know how things go for you on PD
Darren
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:welcomesign;
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:welcomesign;